Additional Support and Resources for NICU and Beyond

Preemie Help

Preemie Help provides preemie information, community, and solutions to the people that need it most... you! Preemie Help is also looking to provide a resource for any professionals that have contact with preterm babies and children in order to help them best understand the challenges that face a preemie.

NICU-Pedia

NICU-Pedia is the complete resource for NICU families from admission to discharge and beyond. It contains NICU jargon, diagnosis and conditions common in the NICU, briefly explains what to expect week by week, and more!

Prematurity.org

Prematurity.org's goal is to support preemie parents by providing information on prematurity and preemie care. Since 1996, the Prematurity website has been a top ranked preemie support site in major search engines, preemie books, TV, and the news. 

Healthcare Professional Information

Special thanks to Medela for providing the following resources for NICU families to access anytime! The Healthcare Professional Information page has literature and brochures you may print and share. 

Providing Breast Milk to Your Premature Baby

Loaded with evidence-based information and tips for mothers providing breast milk to their premature infant, and the appropriate time to use technology to support.  

Breastfeeding Your Late Preterm Infant

Evidence-based information for mothers about breastfeeding their late-preterm infant, including case studies, tips and when technology can provide support.

Breastfeeding University

Breastfeeding University is a collection of online courses and videos designed to help prepare expectant and existing mothers, fathers and even grandparents for the experience of breastfeeding. You can use promotion code MCWA2CNS for complimentary access.

MedelaAtWork.com

MedelaAtWork.com is a resource to support moms as they transition back to work. This source has tips – from experts and moms alike, as well as references for state laws and requirements. 

MyMedela App

MyMedela is a free app available for Apple and Android that allows moms to track their nursing and pumping sessions, as well as diapers, growth and sleep. The exclusive Confidence Assessment was developed by a clinician to help mom reach her breastfeeding goals – providing milestones and expert tips and guidance when she needs it. 

Bereavement Resources

M.E.N.D.

M.E.N.D. (Mommies Enduring Neonatal Death) is here to provide hope and healing through the journey after the loss of a baby.  M.E.N.D is a place for families to connect, share their unique story of loss, and learn to live life without their precious baby.

Mikayla's Grace

Mikayla's Grace has resources for pregnancy/infant loss, as well as information about life in the NICU and beyond. Mikayla's Grace has donation packages; however, does not ship packages out to families because it is a small non-profit and only donates to local hospitals in Wisconsin. 

NILMDTS

Now I Lay Me Down To Sleep (NILMDTS) trains, educates, and mobilizes professional quality photographers to provide beautiful heirloom portraits to families facing the untimely death of an infant. Their mission is to introduce remembrance photography to parents suffering the loss of a baby with a free gift of professional portraiture.